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Apr 20, 2006

Online Communities and Virtual Worlds for Patient and Caregiver Self-Help Groups

Via VRPSYCH mailing list

The Institute of Rural Health at the Idaho State University has announced the following webconferencing session:

Online Communities and Virtual Worlds for Patient and Caregiver Self-Help Groups

Meeting Date and Time: APRIL 20, NOON-1:00 PM MDT (Mountain Daylight Time)
Presenter: John Lester

Online communities offer a unique opportunity for patients and caregivers to share experiences and emotional support with people across the world. John Lester will discuss his experiences with Braintalk Communities (www.braintalk.org), which offers hundreds of forums and chatrooms for self-help support groups focused on a wide range of neurological disorders.
Started in 1993, Braintalk continues to explore new models of online communities and support. John will describe the growth and evolution of Braintalk as well as his work using the 3-d virtual world of Second Life ( www.secondlife.com) to create new online communities supporting people dealing with Asperger's Syndrome, Cerebral Palsy, and Stroke Survivors. He will also summarize how different groups of patients and caregivers can use vastly different communication modalities to help them deal with unique conditions.

John Lester Bio:
John Lester joined Linden Lab (the creators of Second Life) in 2005, bringing experience in online community development as well as a background in the fields of healthcare and education. Previously he was the Information Technology Director in the Neurology Service at Massachusetts General Hospital, where he pioneered the use of the web in 1993 to create online communities for supporting patients dealing with neurological disorders. He also held an academic appointment at Harvard Medical School , where he created online collaborative environments for professors and students to advance the case-based teaching method in medical education. John created and continues to manage BrainTalk Communities, a non-profit organization who's mission is to provide online environments for patient and caregiver self-help groups focused on neurological disorders.

Cut and paste the entire link below including the meeting_id in the address text box of your internet browser.

Session Link:


Meeting Date and Time: Apr 20, 2006 NOON to 1:00 PM (MDT)

This conference session is an open one and DOES NOT REQUIRE A PASSWORD. Thus, you only need to enter your name on the sign in page and log in without entering a password.

Please note: If your computer has a microphone and speakers you will be able to talk and hear while you are in the Elluminate session. If you do not have a microphone, you can still interact with your peers and the speaker through text chat.

If this is the first time you will be using Elluminate, you may be prompted to download some software which may take anywhere from 2 to 20 minutes depending upon your Internet connection speed. We advise you to get your PC ready to access the webconference a day or two before the scheduled date of the talk. You can pre-configure your system with the required software by going to the support page located at:

Elluminate Help Desk Tel Numbers: 866-388-8674 option 2, 703-464-9158

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